Patient Organization Collaboration Promotion Committee

Promoting Patient and Citizen Engagement to Realize Patient Participatory Drug Discovery

Promote mutual understanding through collaboration between the Pharmaceutical Manufacturers' Association and patient groups, identify common issues, and consider solutions

Create opportunities for dialogue and mutual understanding among multi-stakeholders, including medical professionals, academia, and government/authorities, in addition to the Pharmaceutical Manufacturers' Association and patient groups, and promote initiatives (Co-Creation) to resolve common issues.

To promote patient/citizen participation and Co-Creation, strengthen cooperation with each committee within the Pharmaceutical Manufacturers Association of Japan (PMAJ) and enhance the knowledge and skills of the members of this committee.

To gain an understanding of the current status and issues of patient groups and their expectations of the Pharmaceutical Manufacturers' Association through discussions and information exchange at the Patient Group Advisory Board, as well as through interviews and surveys conducted in collaboration with patient groups.

To share the current status and issues of patient groups and the efforts and issues of both committees with the relevant committees of the Pharmaceutical Manufacturers Association of Japan (PMAJ), and to serve as a hub to consider and implement cooperative measures within the PMAJ and multi-stakeholder collaborative measures to resolve the issues.

To serve as the secretariat of the "Society for Creating a Society with Easy Access to Clinical Trials for All" (hereinafter referred to as "Creation Society"), which was established by multi-stakeholders, and to promote activities to resolve issues related to access to clinical trials.

To serve as the secretariat of the "Pharmaceutical Visionary Council," a multi-stakeholder group, and to promote dialogue and mutual understanding, as well as to promote initiatives to resolve common issues.

Provide necessary information to patient groups and communicate the activities and proposals of the Pharmaceutical Manufacturers Association of Japan (PMAJ) in an easy-to-understand manner through the "Creation Meeting", "Pharmaceutical Visionary Meeting", "PMAJ Forum", "Patient Group Advisory Board" and other opportunities, as well as through media such as the PMAJ Newsletter and the website.

Provide learning opportunities for the members of this committee to improve their knowledge and skills, such as lectures and group discussions.

Continuously inform member companies of the "Guidelines for Collaboration with Patient Groups" and the "Guidelines for Transparency in the Relationship between Corporate Activities and Patient Groups" and ensure that they are understood and implemented, and that patient groups are also informed.

Continuously discuss and consider ways to collaborate with patient groups and new initiatives to resolve common issues at the Patient Groups Advisory Board, regular vice chair leaders' meetings, and task forces.