Patient Cooperation Committee

Priority Issues

  1. Promote patient and citizen participation to realize patient-participatory drug discovery
  2. To promote mutual understanding through collaboration between JPMA and patient groups, identify common issues, and consider solutions
  3. Create opportunities for dialogue and mutual understanding between JPMA and patient groups, as well as other multi-stakeholder groups including medical professionals, academia, and government/authorities, and promote initiatives (Co-Creation) to resolve common issues.
  4. To promote patient/citizen participation and Co-Creation, strengthen cooperation with JPMA committees and enhance the knowledge and skills of the committee members.

Initiatives

  1. To gain an understanding of the current status of patient groups, their challenges, and expectations of JPMA through discussions and information exchange at the Patient Group Advisory Board, as well as through interviews and surveys conducted in collaboration with patient groups.
  2. To share the current status and issues of JPMA and patient groups, as well as the efforts and issues of both committees, and to serve as a hub to consider and implement cooperative measures within JPMA and multi-stakeholder collaborative measures to resolve issues.
  3. To serve as the secretariat of the "Society for Creating a Society with Easy Access to Clinical Trials for All" (hereinafter referred to as "Creation Society"), which was established by multi-stakeholders, and to promote activities to resolve issues related to access to clinical trials.
  4. To serve as the secretariat of the "Pharmaceutical Visionary Council," a multi-stakeholder group, and to promote dialogue and mutual understanding, as well as to promote initiatives to resolve common issues.
  5. To provide JPMA's activities and proposals in an easy-to-understand manner, while disseminating necessary information to patient groups through the JPMA Newsletter, website, and other media, as well as at the "Creation Meeting", "Pharmaceutical Visionary Meeting", "JPMA Forum", "Patient Group Advisory Board", and other events.
  6. Provide learning opportunities for the members of this committee to improve their knowledge and skills, such as lectures and group discussions.
  7. Continuously inform member companies of the "Guidelines for Working with Patient Groups" and the "Transparency Guideline for the Relationship between Corporate Activities and Patient Groups" and ensure that they are understood and implemented, and that patient groups are also informed.
  8. Continuously discuss and consider ways to collaborate with patient groups and new initiatives to resolve common issues at the Patient Groups Advisory Board, Chairperson Leaders' Meetings, and task forces.

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