Industry Policy Committee Initiatives with Patient Groups
As of September 1, 2024
| Company name | Activities being undertaken in relation to intractable and rare diseases |
|---|---|
| Astellas Pharma Inc. | Astellas believes that social contribution activities are an important corporate activity as well as the business activity of manufacturing drugs, and we are conducting patient association support (Starlight Partners) activities to provide support to patients and their families. As part of our Starlight Partner activities, we support the human resource development of patient groups* in order to support their independence and sustainable development. In addition to providing three training programs (Peer Support Training, Leadership Training Program, and Patient Expert Program), we also provide grants for projects undertaken by patient groups and free supplies of stationery for events. https://www.astellas.com/jp/sustainability/enrich-the-lives-of-patients |
| Kyowa Kirin Co. | Sponsorship of RDD Japan*.
We continue our sponsorship of RDD Japan, which aims to raise awareness of intractable/rare diseases not only among medical professionals but also among a wider audience. *Rare Disease Day (RDD) is an activity started in Sweden in 2008 to improve the quality of life of patients with rare/intractable diseases through better diagnosis and treatment. In support of the purpose of RDD in Japan, RDD Japan events have been held on the last day of February since 2010. |
| Sumitomo Pharma | Under the global slogan "Innovation today, healthier tomorrows," we are engaged in patient support activities with the hope that "each and every patient and family can live a healthier and more personal life. Main donation recipients Japan Council of Associations for Intractable Diseases and Disorders Japan ALS Association Japan Epilepsy Association Japan Epilepsy Association ● Japan Association of Parkinson's Disease Japan Epilepsy Association ● National Association of Friends of Parkinson's Disease ● Authorized NPO National Network for Supporting Children with Intractable Diseases, etc. |
| Takeda Pharmaceutical Company Limited | Charity Walk
Chugai regularly holds "Charity Walks" in which employees can participate at any time and any place as a charity event that leads to support by walking. Takeda makes a donation according to the total number of steps taken by participants (voluntary) during the event. So far, the event has been held for Gaucher disease, primary immunodeficiency syndrome, and hemophilia, and donations have been made to organizations related to those intractable and rare diseases. |
| Mitsubishi Tanabe Pharma Corporation | In addition to its business activities, the Mitsubishi Tanabe Pharma Group is engaged in a variety of medical and welfare-related initiatives with the aim of realizing vibrant lives for people, including patients and their families. One example is the "Mitsubishi Tanabe Pharma Hand in Hand Partner Program," which was established in 2012 to support activities to improve the quality of life of patients with intractable diseases, such as medical treatment, schooling, and employment, by providing grants to patient groups and their support organizations. https://www.mt-pharma.co.jp/sustainability/support.html |
| Chugai Pharmaceutical Co. |
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